<br>Genetic Spinal Muscular Atrophy Type-1 ails this little boy from Rajasthan's Nagaur district. The disorder is characterized by weakness and wasting (atrophy) in muscles used for movement (skeletal muscles).His hapless parents are crying for help as Tanishk needs an injection worth Rs 16 crore. The parents are poor and hail from a small village. They pin their hope on crowdfunding and appeal to all who can afford to help them out.Shaitan Singh, the father of the kid visited Nagaur MP Hanuman Beniwal, who assured them all help and also spoke to the Superintendent of JK Lone Hospital in Jaipur and other paediatricians regarding Tanishk's treatment.The father told IANS: "Tanishk's life is incomplete without the said gene. The solution to all Tanishk's problems is just one injection, but the cost of this one injection is Rs 16 crore, which is not easy for us to buy. Tanishk is our only child, I work as a lawyer in a small town like Parbatsar.He said Tanishk's trouble started when he was four-five months old."We did not know about the disease at first, but later Priyanshu Mathur, our pediatrician at J.K. Lone Hospital Jaipur, said that Tanishk is suffering from SMA."Till now, we have been able to keep things under control for Tanihk with the help of exercise, so that all the muscles of his body remain active. Our family members take turns to make him exercise for three to four hours a day. His treatment is the world's most expensive injection Zolgensma," informed Singh.Three-year-old Ayansh Gupta from Hyderabad, who was battling rare spinal muscular atrophy, received the gift of life on June 9 as the money required for injection was raised for him through crowdfunding."Our hopes have increased ever since we came to know about Ayansh's story of 'rebirth'. This country belongs to the kind and compassionate people and I hope everyone will definitely help to save my son's life," said Deepika Kanwar with folded hands urging people to contribute so that her only son can live. --IANS<br>arc/in
<br>Being confined to a limited space, unable to meet peers and friends, unable to indulge in sports and physical activities, pursuing education via Internet on mobile and laptop screens or sometimes being left out of classes because the facility is not available, it's a difficult world to adapt to. And while everyone gets a say, they are asked to shut up and study, they are expected to be grateful that they are not getting infected.This causes immense stress on a child, leading to fear, anxiety, sleep disturbance, mood disturbance and behavioural issues. Many children who were already vulnerable have developed panic disorders, obsessive compulsive disorders and anxiety and mood related disorders. The impact on self-esteem and confidence is significant. Some have witnessed higher levels of family conflicts and domestic violence. The uncertainty associated with exams, future, career has further confused high school children. Internet and gaming addiction is on the rise and psychosomatic problems are widespread.<br> <br>The problem statement is huge but it needs to be defined to take effective steps. As psychiatrists, we often see children being referred for behavioural issues but parents are reluctant due to stigma associated with the word psychiatry. But closing one's eyes doesn't make the problem go away. We, as adults, need to anticipate the problem and take preventive measures. Taking into cognizance that children are vulnerable is the first step. Talking to them about their feelings, letting them express their emotions, taking guidance and counselling to manage stress are all measures which can help in avoiding negative outcomes. We need a proper routine, a mutually supportive social environment and discipline to engage in daily activities productively. The emphasis has to be on finding a balance with new way of life, apart from Covid-appropriate behaviour to avoid infection, there needs to be a strategy to ensure balance between physical, emotional and social aspects of life. Interacting regularly with friends and families in small groups, taking time out to play, getting off the screen to enjoy the beauty of nature surrounding us, cooking and eating together, music, dance, arts and crafts are all ways to add creative interest in daily life and de-stress regularly. Those who have lost close family members and parents need professional intervention to deal with the trauma associated with sudden loss.<br> <br>With foresight and empathy, we can find a way to adapt to the post-Covid world and hopefully make it even better.(Jyoti Kapoor is Senior Psychiatrist and Founder of Manasthali)--IANS<br>jyoti/tb
London, The presence of more than five symptoms of Covid-19 in the first week of infection is significantly associated with the development of long Covid, irrespective of age or gender, according to a new study.
For the study, researchers from the University of Birmingham conducted a review that examined long Covid symptoms such as fatigue, shortness of breath, muscle pain, cough, headache, joint pain, chest pain, altered smell, diarrhoea and altered taste.
The team identified two main symptom clusters of long Covid: those comprising exclusively of fatigue, headache and upper respiratory complaints; and those with multi-system complaints including ongoing fever and gastroenterological symptoms.
The findings are published in the Journal of the Royal Society of Medicine.
"There is evidence that the impact of acute Covid-19 on patients, regardless of severity, extends beyond hospitalisation in the most severe cases, to ongoing impaired quality of life, mental health and employment issues," said lead author Olalekan Lee Aiyegbusi, Deputy Director at the University's Centre for Patient Reported Outcomes Research.
"More than one-third of the patients in one of the studies included in the review reported they still felt ill or in a worse clinical condition at eight weeks than at the onset of Covid-19," Aiyegbusi added.
In a comparison with other coronaviruses, the researchers suggest that in the longer term, patients with long Covid may also experience a similar disease trajectory to that of patients who had SARS or MERS, pointing to analysis showing that six months after hospital discharge, approximately 25 per cent of patients hospitalised with SARS and MERS had reduced lung function and exercise capacity.
"Neither the biological or immunological mechanisms of long Covid, nor the rationale for why certain people are more susceptible to these effects, are yet clear, limiting development of therapies. It is essential we act quickly to address these issues," said Shamil Haroon, Clinical Lecturer in Primary Care and co-Principal Investigator in the study. (agency)
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The more you procrastinate, the higher your risk of developing dental problems. Visiting your dentist regularly can actually make the entire process easier on many levels.
Richa Vats, a doctor and Geriatric Dentist shares how to deal with dental anxiety and overcome any fears:
Dental anxiety is just like any other anxiety: Choose your dentist wisely. Choose a dentist who will listen and acknowledge your fears if they can't be empathetic when you are talking to them, it's likely they won't be during the treatment either. The right dental team will make sure your dental and your emotional health are taken care of.
Fear of needles: The fear of needles isn't just restricted to dental patients make sure you talk about this to your dentist before the appointment. There are effective numbing gels that are given before injections. This means you won't feel anything.
The drill: This instrument may sound and look scary. But it only dispenses air, water and rotates the drilling bur. When sufficiently numbed you won't feel any pain at all. Just some vibration is felt. If the sound troubles you keep your earphones handy and listen to your favourite song
Pain: If you had a bad experience previously you may be afraid of it happening again. This can be managed by learning ways to relax, deep breathing techniques, a dentist you are comfortable with and numbing gels.
Embarrassment about bad teeth: You don't have to be conscious of your teeth, we have seen worse. We as dentists won't ever judge you by your tooth health. That's the reason you are here to visit us. Keep a consultation appointment before your procedure so that you can talk to your dentist about your fears and they can make you more comfortable during the procedure.
Sedation fears: These fears can be categorised into two categories: Some feel they will not be numb enough and they will be in pain. While others fear being numb will cause them to doze off or suffocate, choke or unable to swallow. It is important to realise that the tooth in concern is the one that is being anaesthetized. Sometimes your cheek tongue may feel swollen when numbed but it won't be. Also, anaesthesia makes you lose the sensation in these areas but not the function.
Now let's talk about how can we help you overcome your dental fears and anxiety. Identify your fears. Once you know what exactly you are fearful about you can start working towards the solution.
Talk: You will have to speak about your dental anxiety and what caused it. It could be a past traumatic procedure with you or someone known to you, or it could be your fear of the unknown. Your dentist and the dental team would be able to cater to your needs in a better way if they know about your anxiety. You can plan your appointment in the morning when you are relaxed. Also, don't be afraid to ask questions. Ask your dentist to explain the entire procedure to you beforehand. If you experience pain even with the local anaesthetics, be vocal about it. Don't be shy to interrupt the dentist via a signal during the procedure if you are uncomfortable.
Distract yourself: This is an effective method to reduce dental anxiety. You can wear headphones if the sound of the drill bothers you and hear your favourite music. You can also squeeze a stress ball or play with a small handheld object like a fidget spinner while you are being operated upon. Mentally you can try imagining your happy place and visualise yourself at a relaxing beach or a garden etc.<br> <br>Mindful techniques: Relaxation starts in the mind so try deep breathing exercises to help relax tension in your muscles. You can also take short breaks in between the procedure. Count your breaths slowly and then exhale for the same number of counts. Concentrate on relaxing your muscles one body part at a time starting with your head and work all the down to your toe.<br> <br>Take someone with you: Some patients find it comforting to take a friend along.<br> <br>Ask for the perception of pain: Your dentist can tell you about the sensations you might experience, for instance, a tingle or a mosquito bite.<br> <br>Seek professional help: The best course of action is to deal with the root cause of your fear and unless you do this you will always fear trips to the dentist. These fears and anxieties may affect your quality of life if they are left untreated and may prevent you from having important treatment or visiting the dentist at all.
(This article is website exclusive and cannot be reproduced without the permission of IANSlife. N. Lothungbeni Humtsoe can be contacted at firstname.lastname@example.org
Washington, July 13 (IANS) The US Food and Drug Administration (FDA) added a new warning on the Johnson & Johnson Covid-19 vaccine, saying the jabhas been linked to a serious but rare side effect called Guillain-Barre syndrome.Guillain Barre syndrome is a neurological disorder in which the body's immune system damages nerve cells, causing muscle weakness and sometimes paralysis, Xinhua news agency reported citing the FDA as saying.The syndrome has occurred in some people who have received the Johnson & Johnson vaccine, the FDA in a letter on Monday. In most of these people, symptoms began within 42 days following injections of the vaccine, it added.The chance of having this occur is very low, the agency said.About 100 preliminary reports of Guillain-Barre syndrome have been detected in vaccine recipients after the administration of 12.8 million doses of the Johnson & Johnson jab in the US, The Washington Post quoted the Centers for Disease Control and Prevention (CDC) as saying in a statement.Of these reports, 95 were serious and required hospitalization, and one had dead.The cases have largely been reported about two weeks after vaccination and mostly in men, many aged 50 and older, according to the CDC.Johnson & Johnson said on Monday it has been in discussions with the FDA and other regulators about rare cases of Guillain-Barre syndrome.The chance of having this occur is very low, and the rate of reported cases exceeds the background rate by a small degree, the company said in a statement. --IANSksk/
Hyderabad, July 12 (IANS) Over 40 per cent of people who recovered from Covid-19 are still having post-Covid symptoms and many are reporting newer symptoms like insomnia and neuropsychiatric issues, revealed a pan-India survey by AIG Hospital.As India crosses 3 crore Covid recoveries, the incidence of post-Covid symptoms is noticeably increasing across the country.Over 40 per cent of Covid-recovered patients said that they are still having symptoms, out of which weakness/fatigue was reported the maximum. Many patients also reported newer symptoms like insomnia and neuropsychiatric issues among others."We were seeing many such post-Covid patients in our hospital, but this survey gave us the true picture of this post-Covid Syndrome. If this is an indication to go by then we are looking at over 1 crore people in India who have recovered from Covid-19 but are still having certain symptoms," said Dr D. Nageshwar Reddy, Chairman, AIG Hospitals.The survey also revealed that 74 per cent of hospitalised patients during their Covid-19 treatment received steroids but 34 per cent required oxygen. "We believe there is some correlation between irrational use of steroids and post-Covid complications because as per the guidelines we are supposed to give steroids to only those Covid patients who require oxygen," he said while calling for further research in this regard.Looking at the urgent need to address the issue of post-Covid complications, AIG Hospitals announced the launch of India's first dedicated post-Covid Care Clinic. The clinic will comprise of a multidisciplinary team with experts from Internal Medicine, Cardiology, Gastroenterology, Neurology, Nephrology, Rheumatology, Psychiatry, Orthopedics, among others providing comprehensive care. The objective is to evaluate and manage these patients from a holistic point of view.The findings of the AIG Covid Survey are now being published as a research report currently available as a pre-print."It is commendable on part of AIG Hospitals to come up with such an initiative, a first-of-its-kind dedicated Post-Covid Care Clinic so early and showing the way ahead in managing these post-Covid cases. It will be important to see what newer protocols will be required for these patients and it is our cumulative responsibility to help in this regard," said Narsing Rao, Principal Secretary to the Telangana Chief Minister.--IANSms/kr